IPF
discussion guide

IPF is a serious condition, but there are treatment options that may help manage its impact and may help you stay active longer.

Discuss your treatment options together with your doctor and decide on an approach that is right for you.

The sections below will help you discuss IPF and your options with your doctor.

Preparing for the consultation

These three steps will help you prepare for your conversation: Discuss your
management
options
with your
doctor and
decide on
an approach
which is right
for you

Know your OPTIONS

IPF treatments may help you stay active longer and may have a big impact on your way of life so find out as much as you can about your treatment options. More information can be found under ‘IPF treatment options’ in the Resources Zone or in the downloadable discussion guide. It is also very important to speak to your doctor about your experience with IPF and the right approach for you.

Bring someone YOU TRUST

If possible, bring someone you trust with you. Friends and family can provide the support you need before, during and after any consultation – and together you can make the best decision on treatment.

Share YOUR GOALS

Tell your doctor what matters to you and your family; this could be everyday activities like walking the dog or gardening as well as events in the future such as attending a wedding or graduation ceremony. Then ask your doctor how he or she can help you achieve the goals that matter most to you.

Talking to your doctor about IPF and your options

Ask someone you trust to come along to see the doctor with you, so you can choose the treatment options that are right for you.

Here are some prompts and questions to help talk about what you want to achieve from treatment:

If you can,
discuss your
personal goals,
questions and
treatment options
with someone
you trust

before your
consultation

YOUR GOALS – WHAT MATTERS MOST TO YOU

Daily goals: what are the activities that matter most to you and that you would like to hold on to?

Future goals: it’s important to have things to look forward to in the longer term. Do you have any special occasions or goals in the future where your IPF could get in the way?

QUESTIONS TO ASK YOUR DOCTOR

Understand your current therapies, and what other options are available to you:

  • Which treatment options are you currently being given for your IPF?
  • Are you taking medicines for other conditions or to help symptoms such as frequent coughing?
  • What other therapies might be suitable for you?
  • What are the benefits and risk of these therapies?

DISCUSS YOUR PERSONAL GOALS - BOTH SHORT AND LONG TERM

  • What might help you carry on doing what matters most to you today?
  • Which IPF treatment options might best help you hold on to your independence and achieve your future goals?

Remember always
INFORM
your doctor

of any other
medications and
health conditions